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Project Overview

Consumer Voices in Clinical Trials (ConVICTioN) is a group of NSW health consumers that were brought together in late 2021 for a project funded by the NSW Government’s Office of Health and Medical Research. The aim of the project was to develop consumer co-designed resources to help increase awareness and participation in clinical trials in NSW. Membership of the group is diverse in health and cultural backgrounds, age, location across NSW and in clinical trials experience. The team supporting ConViCTION includes members of Sydney Health Partners, Health Consumers NSW, Northern NSW LHD and AccessCR.

Walking the talk cover

Key project messages

  • This project is currently ongoing at the time of writing, therefore outcomes are unable to be stated yet.
  • What we know so far:
    • Young people have significant negative experiences with the healthcare system both as consumers and when engaging in policy and service design, much of which can be attributed to their age.
    • Young people have crucial insight into how the healthcare system, services, and organisations can improve engagement with them, but they have not felt heard thus far.
    • Young people from marginalised groups experience compounding difficulties when engaging with the healthcare system and services.

Project Outcomes

What did we produce as part of the project? Is there a report? Did something else come out of the project? Have people changed their behaviour? Has a service been made better? Did we find a cure for cancer together?

As part of this project, a report was created ‘White Paper: Engaging with young people, how are we doing?.

This report offers insight into young Australians wants and needs, experiences with healthcare and COVID-19, and the youth engagement landscape over the past decade or so.

Through this, we identified four key areas for improvement: best practice and sharing power, co-design and collaboration, intersectionality, and follow up and sustainability. These key aspects informed our next steps into the engagement phase of the Walking the Talk project.

Walking the talk cover

Visiting Guide

Enabling family presence in a COVID-19 normal world.

What next?

We will be developing a strategy alongside our young collaborators to improve youth engagement for HCNSW and AWCH. We will also be creating a final report to offer a comprehensive overview of the findings. We aim to continue this work into 2023 as we work towards implementing the findings and developed strategies into the work of HCNSW and AWCH.