Elevating the Human Experience
Health consumer reps needed for the NSW Ministry of Health’s Elevating the Human Experience working groups. Lodge your Expression of Interest now!


Health consumer reps needed for the NSW Ministry of Health’s Elevating the Human Experience working groups. Lodge your Expression of Interest now!
The NSW Government is introducing Real Time Prescription Monitoring (RTPM) of certain medications that have the potential to cause dependence and be harmful. A public consultation into changing the amendments Poisons and Therapeutic Goods Regulation 2008 is now underway.
The Agency for Clinical Innovation’s consumer partnerships team is developing new practices around the recruitment and onboarding of consumer partners to ACI projects, networks and programs. They would love to get your input into the drafts of these documents.
New research, commissioned by the NSW Council of Social Services (NCOSS) and undertaken by the National Centre for Social and Economic Modelling (NATSEM) and us, shows the relationship between economic disadvantage and patient experience of health services across New South Wales.
The research, and the patient stories we collected, focus on the costs, delays and expectations experienced by patients of General Practitioners, private and public dental, and medical specialist services in NSW. We hope it will inform and bring to the fore patient and family perspectives around the issues faced by restricting patients’ visitors into health facilities. It recognises each of the stakeholder groups as essential and significant players in keeping each other safe and acknowledges that no one stakeholder group can succeed alone. We are all dependent on each other.
Risks and benefits of partnering with the pharmaceutical industry//
Some consumer organisations are only able to operate with the support of pharmaceutical companies, while others have explicit policies of not accepting money from industry. Industry funding allows some groups to be able to offer additional services to their members, yet others have concerns that such partnerships impinge on their independence.
The report outlines a set of principles, as developed by health consumer representatives, in response to the challenges faced by NSW Health with protecting staff, patients, families, and all who enter the facilities, from COVID-19.
We hope it will inform and bring to the fore patient and family perspectives around the issues faced by restricting patients’ visitors into health facilities. It recognises each of the stakeholder groups as essential and significant players in keeping each other safe and acknowledges that no one stakeholder group can succeed alone. We are all dependent on each other.
Involving consumers in strategic and operational decisions in healthcare has never been more
important. In an unprecedented situation such as COVID-19, consumers are a key stakeholder and
an essential source of advice and guidance in your work.
Our Ageism survey is still online and we continue to gather data. If you think you’ve been treated differently in health care because of your age (no matter what your age) we would like to hear from you. The workshops have been postponed.
In January 2020, one of our long-standing Board members, John Stubbs, resigned from our Board. We are sad to see John go and hope to see him back and involved with our organisation in the future. We fully support and understand the reasons for his resignation and wish him all the best in 2020.
Health consumers everywhere have lost a true champion with the passing of Diana Aspinall, at age 80. A leading figure in the development of the health consumer movement in the Blue Mountains, Diana was also one of our (Health Consumers NSW’s) founding members.
Diana Aspinall, champion of health consumers
Health consumers everywhere have lost a true champion with the passing of Diana Aspinall, at age 80. A leading figure in the development of the health consumer movement in the Blue Mountains, Diana was also one of our (Health Consumers NSW’s) founding members.