What was it that got you involved as a consumer advocate?
It was my journey managing and supporting my late sister Kate during her time with a pancreatic neuroendocrine cancer that inspired me. For five years we navigated a health system that was unprepared to provide a young woman with a rare cancer the medical and psychosocial support and treatment that we have come to expect for more common cancers.
Utilising my medical knowledge and immature advocacy skills we were able to access treatment and support that prolonged and improved the quality of her life. This positive experience of health consumer activism inspired me to share and promote the role of ‘well equipped’ health consumers as a part of the solution to improving the delivery of healthcare.